First Of It Kind: US Doctors Create Fresh Head For Nigerian Child Born Without Skull

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The Power Of  Money! With much
expectation, the world is waiting to see
Okiki Jesu Olawuyi grab a fitting place
in the Guinness Book of World
Records. Many across the world want
to see this happen. And what that
means is that a Nigerian child is well
on her way to making history once she
scales the mountain of surgeries
standing in her path of life.
OkikiJesu Olawuyi was born without a
skull but not without a will to live.
Bones from her hands are being
obtained to construct a skull bone to
help her live.
Amazingly, she is winning this battle
for her life at John Hopkins University
in far away United States of America.
There, the best hands the world can
assemble are with herevery passing
hour fighting a medical war to give life
to a miracle child who has announced
to the entire human community that
she has something different to offer.
First grade surgeons – irrespective of
colour, race and tongue are tasking
their expertise to see that this wonder
of the 21st century lives to tell her story
and reports say that they are doing a
great job to save her.
OkikiJesu is getting moral and material
support from across the world to help
her live. An avalanche of support is
coming her way. Her parents are
carrying the burden of pain and
anguish with stoic patience. They are fighting to remedy a medical case they
cannot tell how it all started. The child
needs a lot more financial assistance to
pull through, her father, Mr. Caleb
Olawuyi, says. He disclosed that she
needed an additional $500,000 to
undergo the final operation that would
enable her live a normal life. Experts
say that is possible and they can
achieve that. While appealing for
generous support from government,
corporate organizations and private
individuals to help the baby live, Mr.
Olawuyi, has equally urged
government to set up funds to assist
babies afflicted with critical ailments.
Speaking straight from the heart, he
noted that one needed to be close to a
child in pains to know how it feels.
Since news of the child’s medical
condition was disclosed, the world has
been aghast. She was born on May 11,
2010 with a rare birth deformity which
means over 50 per cent of her skull
doesn’t exist. The world has not seen
anything of this stuff. In recorded
history, Sunday Sun gathered that this
medical condition has never been
reported anywhere. The child’s
condition is one that appears to have
turned medicine on its head, having
thrown up tremendous professional
challenge to the human race. Now, the
very best the worldhas known are
fighting a crunchy battle to overcome
this, leaving many – particularly those
with hearts of stone- wondering if
there is nothing they can offer to help.
Now from the home sector, help is
coming for three-year-old Okiki and
her parents. Since the condition of the
baby became public knowledge, a non
profit organization had stepped in to
assist. Global Initiative for Peace, Love
and Care (GIPLC) has been doing all it
can to give life to the child whose
medical conditionis not traceable to her
parents. With the assistance of the
organization’s Coordinator and Project
Manager, Mr. Nuhu Kwajafa, the child
and her parents were on May 4, 2013,
flown to the United States. There, she
is currently undergoing skull
reconstruction surgery at the John
Hopkins University Medical Centre.
Now, the child’s and her father’s cry
for help comes ringing through the
airways asking Nigerians to help her
live. Here is a child the world is
interested in. The non-profit
organization is doing its best at that
level to help her survive. Sunday Sun
gathered that while the world was a
short while away from screaming
uhuru at the wonderful breakthrough,
an unforeseen complication arose after
over 14 hours of surgery. This followed
inconsistencies in her medical history.
Besides, her case marked a maiden
attempt in paediatric neurosurgery.
This, therefore, led to a further
accumulation of medical bills totaling
over US$500,000. This bill is spiraling
every passing day OkikiJesu and her
parents spend at the Johns Hopkins
facility.
Specialists in the USA have identified
the rare birth deformity which
OkikiJesu is suffering, as Congenital
Cranial Deficiency. Before now, she
had been to several hospitals but not
cured, but luck flashed on her pathway
when GIPLC, whichis based in Abuja
took up her case. Sunday Sun learnt
that since then, the organization has
recorded significant success in efforts
to get medical care for her. Within just
a week, it raised about $234,000, an
equivalent of N37 million through kind
gestures from individuals and groups
for her treatment at John Hopkins
Hospital. Kwajafa , just back from the
United States, told Sunday Sun that
“prior to the complications which
arose, what made a determination of
thefull cost of Okiki’s surgery difficult
is that in modern times, it is an
extremely rare (perhaps singular)
medical condition with no
precedenceto draw estimates from.
“This latter fact also means that it is
equally difficult to tell what other
medical complications may arise. An
example are fluids that were retained in
her cranial cavity which have posed an
unforeseen challenge and may have led
to a fatal infection.” Kwajafa’s worry is
that, “OkikiJesu may not be released
from hospital until all outstanding bills
have been paid. We and her parents are
desirous of her condition being fully
remedied before she leaves the
hospital.” Against this backdrop, he
said “We would like to appeal to the
global public to support our cause in
ensuring that OkikiJesu Olawuyi lives.”
Medical analysts believe she will be a
living testimony if she recovers.
According to GIPLC, her case remains
the only one of its kind in the world.
When OkikiJesu’s father, Mr. Olawuyi
spoke to Sunday Sun on telephone
from John Hopkins Hospital, he
expressed optimism that the girl was
doing well and had remained in stable
condition. He said “We thank God that
she is responding positively to every
operation performed on her. The
doctors attending to her are also
pleased with her present condition.
They said she is a miracle
child,because she is so far the only
child in the world with this kind of
health condition.
“They told us that there is no case of
her type in medical history at their
disposal the world over.There are three
renowned doctors attending to
OkikiJesu and the experience is so
great.
“They keep assuring us that everything
will be fine soon. We are also hoping
positively and asking God to deliver
our child.” In a voice laden with
emotion, he appealed to Nigerians to
assist the child to live through
theirgenerous donations, pointing out
that with money available, the baby was
sure to survive.
“But our greatest challenge here is the
cost of her treatment in the hospital.
It’s indeed a very tough experience for
us as parents.
The medical bill keeps increasing daily
and has since been piling up. The
treatment has over-shot the initial bill
that was given to us before we came,
because her condition exceeded their
estimation.
The major issue is the hospital bill and
not really our up-keep, that is, myself,
my wife and our 15-month old baby,
(Okiki’s younger sister). She is
currently at the intensive care unit
(ICU). This costs between $6,000 and
$10,000 daily. Sometimes, two nurses
are stationed to take care of her daily
and it costs a lot of money. “The good
thing is that they are not taking any
chance. They are all over her all the
time. They are monitoring her
regularly especially as she isan
international patient. The bill is
growing higher,” he lamented.
Okiki’s father further stated that for
“every parent of a child with this
critical health challenge, one only
manages to sleep and to wake up
hoping that the next day would be
different. We have gone through this
trauma allthis while. Though, we have
faith in God but every passing day, we
are afraid for her life. Here in the
hospital, as critical as her condition is ,
we are living and sharing her pains
more so that the bills pile up every
moment.
“We appeal to Nigerians not to give up
on Okiki.With their support, God will
not disappoint us because she keeps
improving daily. All the operations
have been very critical. They took
bones from her hand and leg to
construct her skull. And she is doing
fine.
“We appreciate efforts by all Nigerians
including individuals, groups and
corporate organizations. Everybody
has been very supportive. We thank the
Nigerian government,the National
Assembly, and particularly the Speaker
of the House of Representatives,
Honourable Aminu Tambuwal and
other kind-hearted people and
members of our family for their
support.
“On behalf of our daughter Okiki, and
other children and parents in this
condition, we urge government to
institute a Special Trust Fund to take
care of such rare and critical cases in
the country. This fund should be
adequately fundedto cater for such
critical needs.
“For us, Okiki’s parents, we are in this
condition but hope that one day God
will deliver us.
“In this situation, we repeat our appeal
for quick intervention from the
government and other Nigerians. Our
wish here is that others should be
spared this experience.
We plead further with government to
establish a fund to cater for such
children in this condition.”
Thanks to Gistplant.

Posted By K2I

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About iamk2i

IamK2I. A Radio OAP. Media Is My Life!!!

Posted on July 29, 2013, in Uncategorized. Bookmark the permalink. Leave a comment.

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